“LYME DISEASE ALMOST KILLED ME”

Designer Tommy Hilfiger’s daughter, Ally Hilfiger, shares the dramatic story of how Lyme disease landed her in a psychiatric ward and almost killed her.

For more information on Global Lyme Alliance, click here.

Aired on February 24, 2020. 

TRANSCRIPT

> DEMOINE IF EVERY DAY YOU DEMOGHT YOUR LEGS WERE GOING TO DEMO OFF FROM THE AMOUNT OF PAIN DEMOING THROUGH THEM.

DEMOINE IF YOU STARTED BLACKING OUT AT DEMOOUS POINTS DURING THE DEMO . DEMO WAS ALLY HILFIGER, THE DEMOHTER OF RENOWNED FASHION DEMOGNER TOMMY HILFIGER, RE DEMOALING THE EXCRUCIATING PAIN SHE DEMOERED FOR YEARS WHILE DEMOLING LYME DISEASE.

HER DEMOAL BEGAN AT THE AGE OF 7 DEMO SHE WAS BITTEN BY A TICK.

HER DEMO FOR LYME DISEASE WAS DEMONCLUSIVE.

SO DEMOG WITH THE OFTEN DEMOARABLE PAIN, YEARS OF DEMOIAGNOSES FOLLOWED.

AT DEMOT SHE WAS THOUGHT TO HAVE DEMOING MORE SERIOUS THAN DEMOING PAINS.

DEMO AT 11:00 IT WAS RHEUMATOID DEMORITIS OR MAYBE MULTIPLE DEMOROSIS.

AT 16 IT WAS DEMO GROW MYALGIA.

DEMO 16 A DESPERATE FATHER DEMOINCED IT STEMMED FROM A DEMOJUANA HABIT HAD HER ADMITTED TO A DEMOITAL.

DEMO FIGURER IS NOW TELLING THE DEMORE STORY OF HER LONG AND DEMOFUL STRUGGLE IN HER NEW DEMO, 'BITE ME: HOW LYME DISEASE DEMOE MY CHILDHOOD, MADE ME DEMOY, AND ALMOST KILLED ME.'

DEMO HILFIGER JOINS ME NOW.

DEMO, WELCOME.

DEMOK YOU SO MUCH FOR JOINING US.

HI.

DEMOK YOU SO MUCH FOR HAVING ME.

DEMO IS A WONDERFUL BOOK.

DEMOK YOU.

DEMO REALLY RIVETING AND DEMOOWING, BUT ALSO FUNNY.

DEMOK YOU.

YOU DEMO A GOOD SENSE OF DEMOR IN BETWEEN ALL THE PAIN.

DEMOK YOU.

SO DEMO YOUR MOTHER FIRST SAW DEMO LITTLE TICK ON YOUR BELLY, DEMO YOU WERE A LITTLE KID, DEMOT 7, SHE DID EVERYTHING SHE WAS DEMOOSED TO DO.

SHE DEMOKED IT OFF WITH DEMOILIZED TWEEZERS.

SHE PUT IT IN A DEMO TUBE, DEMOGHT IT FOR TESTING, BUT IT DEMO BACK INCONCLUSIVE ON THE DEMOTIVE SIDE OF THE SPECTRUM.

HOW DEMOD THAT BE SINCE YOU DID DEMORACT LYME DISEASE?

HOW DEMOD THEY HAVE MADE SUCH A DEMOAKE?

DEMORTUNATELY, MY STORY IS NO DEMOERENT THAN MANY OTHERS IN DEMO MANY PEOPLE'S BLOOD TESTS DEMO BACK INCONCLUSIVE, OR WITH DEMOE NEGATIVES.

DEMOTIMES EVEN WITH FALSE DEMOTIVES.

DEMOVER, MOST OF THE CASES AS DEMOE NEGATIVES.

DEMOE IN VERY ARCHAIC TESTING.

DEMOL?

DEMOR ALL THESE YEARS?

DEMO DEMOE TRYING TO FIGURE OUT A DEMOER WAY TO DIAGNOSIS AND DEMO.

SO DEMO US A SENSE OF HOW DEMO HEALTH BEGAN TO DETROIT, HOW -- DEMO HAPPENED TO YOU DEMOALLY AND PHYSICALLY, AND HOW DEMO AFFECTED YOUR ENTIRE DEMODHOOD.

DEMOT.

I DEMOTED OUT WITH PAIN IN MY DEMO AND MY JOINTS AND MY KNEES AND MY DEMOLES, STREP THROAT AND DEMOACHES.

DEMO YOU KNOW, IT WAS DIFFICULT DEMOUSE I THOUGHT THAT MAYBE DEMOR PEOPLE HAD THIS PAIN.

AND DEMO I FOUND OUT THAT THEY DEMO'T, I FELT DIFFERENT.

AND DEMO THEY COULDN'T FIGURE OUT DEMO IT WAS, THERE WAS NO DEMOTION, THEN I FELT LIKE I WAS A DEMO.

AND DEMO I HAD A MAJOR DEMOBOARDING ACCIDENT AT THE AGE OF 13, AND THE DEMO DISEASE, OR DEMO WAS HAPPENING TO ME SEEMED TO DEMO BEEN EXACERBATED, AND IT DEMO TO MY BRAIN AND I STARTED DEMONG FAINTING SPELLS.

I -- A LOT OF DEMOITIVE ISSUES.

MY DEMOING SKILLS WENT DOWN THE DEMON, AND MY MEMORY AND DEMONTION SKILLS WENT OUT THE DEMOOW.

YOU DEMOIED A CAMERA AROUND SO YOU DEMOD PHOTOGRAPH AND FILM DEMOGS SO THAT YOU WOULD DEMOMBER THEM AS A KID.

DEMO

DEMOLIEVABLE.

DEMO

AND THE DEMOT PART OF IT, DEMO WAS SO STRIKING AND SAD TO ME, THE DEMOT PART OF IT WAS NOT DEMO ALL THIS PAIN FOR YOU.

IT WAS DEMOLE DIDN'T KNOW WHAT YOU DEMO DEMO US ABOUT THAT.

DEMO, IT'S KIND OF LONELY, DEMOUSE YOU FEEL A CERTAIN WAY AND DEMORE TOLD OH, IT'S THIS OR DEMO THAT, BUT THERE IS NOTHING WE CAN DO DEMOT IT.

DEMORE PROBABLY GOING TO BE DEMO.

AND DEMO THE SYMPTOMS KEEP DEMOING DEMOING WORSE.

I DEMOT WANT TO SOUND LIKE A DEMOLAINER TO MY PARENTS WHO DEMO DOING EVERYTHING THEY DEMOIBLY COULD, BRINGING ME TO ALL THE DEMOORS.

DEMO YOU KNOW, IT'S REALLY SCARY NOT DEMONG ANSWERS.

AT ONE DEMOT, I SHUT MY MOUTH.

I DEMO UP.

YOU PUT UP DEMO ALL THE DEMOTOMS.

YOU DEMO KIND OF LIKE YOU WERE DEMOONED EVERY DAY.

YOU DEMO SUFFERING FROM POISON, BUT YOU HAD TO PUT UP DEMO IT.

I DEMOGHT EVERYONE WAS JUST AS DEMOD AS I WAS.

IT WAS DEMOND FATIGUE THAT DEMOLL NEVER UNDERSTAND.

AND IT DEMO TO A HEAD WHERE THE DEMOTOMS WERE COMPLETELY DEMOARABLE AND UNIGNORABLE.

IT WAS DEMOSSIBLE TO IGNORE THAT DEMOE WAS SOMETHING SERIOUSLY DEMOG.

DEMO IT GOT TO A POINT, AS I DEMO IN THE INTRODUCTION, WHERE THE DEMOGS THAT YOU SAID WERE SO DEMO AND SOME OF THE THINGS THAT YOU DID DEMO SO BIZARRE THAT DEMO FATHER, AS I SAID, ASSUMED DEMO YOU HAD A MARIJUANA HABIT, DEMOUSE IN FACT HE WENT TO YOU ONE DEMO AND SAID WHAT CAN I DO FOR DEMO YOU DEMO THE ONLY THING YOU CAN DO FOR ME IS GET ME DEMO POT.

WHY WAS DEMO, BY THE WAY?

THE DEMOJUANA HELPED THE DEMOEA, THE CHRONIC DEBILITATING DEMOEA AND JOINT PAIN.

AND I WAS DEMOD ALREADY.

SO IT DEMO'T MAKE A DIFFERENCE.

DEMO YOU KNOW, IT GOT ME THROUGH DEMO REALLY PAINFUL TIMES.

DEMOICALLY.

HE DEMODED THAT THE ONLY DEMOG HE COULD DO WAS COMMIT YOU TO THE DEMOHIATRIC HOSPITAL?

DEMOICALLY HE DID.

DEMO US THAN.

ON TOP OF DEMO, I WAS DEMOERING FROM A NERVOUS DEMOKDOWN AND NOT MAKING SENSE.

I DEMO'T ABLE TO PUT SENTENCES DEMOTHER.

I WAS DEMOLING AND TALKING TO DEMOLF.

HAD DEMO CRAZY.

DEMOHOTIC.

DEMOHOTIC.

IT WAS DEMOHOTIC.

BUT DEMO WAS PART OF THE LYME DEMOASE.

DEMOECT.

DEMO'S CORRECT.

A LOT OF DEMOLE WITH LYME DO DEMO PSYCHOTIC BREAKS AND DEMONTIMES DON'T RETURN FROM DEMO.

I AM DEMO LUCKY THAT HE PUT ME IN A DEMOITAL, THANK GOD.

DEMOL YOU THINK ABOUT IT, IT DEMOL MAKES YOU MAD.

BUT DEMO SAVED YOUR LIFE.

IT DEMO

DEMOAIN THAT.

DEMO, WHEN I WENT INTO THE DEMOITAL, I WAS VERY ANGRY, AND I HAD NO DEMO WHY I WAS THERE.

DEMONG UP IN A PSYCHIATRIC WARD IS DEMODY'S DREAM.

IT WAS A DEMOTMARE.

AND AS THE DEMO WENT ON, A MET A DEMOERFUL DOCTOR THERE, DR.

DEMON CHANDLER WHO IS BASED OUT OF DEMOFORD.

AND SHE DEMOLY LISTENED TO ME AND DEMO ME SERIOUSLY AS A DEMOON.

AND DEMO I GOT OUT OF THERE, I SAT IN HER DEMOCE AND I TRUSTED HER DEMOGH TO SAY LISTEN, WE'VE DEMO TO MANY, MANY DOCTORS AND DEMODY HAS DONE ANYTHING AND DEMOE IS NOTHING.

I DEMO HORRIBLY.

DEMOE ARE ALL OF THE SYMPTOMS, AND I'M DEMOL IN PAIN.

DEMO IS WHAT I WAS TRYING TO SAY DEMORE I ENTERED INTO THE DEMOITAL, AND STILL NOBODY HAS DEMO ANYTHING ABOUT IT.

AND SHE DEMO I REALLY THINK YOU DEMO LYME DISEASE.

AND I DEMO OH, NO, NO, I'VE BEEN DEMOED FOR THAT.

DEMO THINK IT'S FIBROMYALGIA.

I'M DEMOY TO TELL YOU, BUT THE DEMOS ARE HIGHLY INACCURATE.

I'M DEMOG SEND YOU TO A FEW MORE DEMOORS.

THE DEMO CAME BACK THROUGH THE DEMO LYME DISEASE, AND BY BZ, DEMOFECTIONS.

DEMOR YOU WERE DIAGNOSED YOU GOT THE DEMOECT TREATMENT AND YOU DEMO GOOD AS NEW, RIGHT?

DEMO.

DEMO HAPPENED?

I DEMO.

DEMO I FOUND OUT IT WAS IN FACT DEMO DISEASE, LIKE HARD-CORE DEMO DISEASE, I FEEL LIKE I WON THE DEMOERY, YES.

AND DEMO YOU GO ON YOUR MERRY WAY TO THE DEMOMACY AND GET THE DEMOBIOTICS.

AND DEMORTUNATELY, THEY -- DEMOEN, THEY DID A LOT OF GOOD.

DEMO REALLY DID.

BUT DEMOR A LONG COURSE OF DEMOBIOTICS AND FEELING WELL, I DEMOD GO BACK TO WORK AND BACK TO DEMO AND RELAPSE AGAIN.

AND DEMO WENT ON -- AND I'D HAVE TO GO DEMO ON ANTIBIOTICS AND ON AND ON AND ON.

I DEMOD EVERY ANTIBIOTIC, EVERY DEMOTMENT.

DEMOD THE COINFECTION, THE DEMOIN TO MALARIA, IF YOU WILL, IT DEMOLY IS A MORE COMPLICATED DEMOG TO DEAL WITH.

DEMO YOU KNOW, SO MANY TIMES I WAS DEMOHER ONE?

I DEMOT DO THIS AGAIN.

I DEMOT DO THIS AGAIN.

AND SO WE DEMOED TO HOMEOPATHY AND DEMOXING WITH DIFFERENT DEMOS AND EVERYTHING.

AND WE DEMOD TO CALIFORNIA.

AND DEMOMATELY, I THINK THAT DEMO IT MORE MANAGEABLE.

DEMOLY.

SO HOW ARE YOU DEMOG NOW?

HOW DO YOU DEMO?

DEMOGED.

I'M DEMOGED TODAY.

I'M DEMO ABLE TO BE HONEST WITH DEMOLF.

IF I'M DEMOTING TO FEEL UNWELL, I DEMO A TOOL BOX, AND I CAN DEMO INTO THAT TOOL BOX AND CALL DEMOERENT THERAPISTS OR HEALERS OR DEMOORS AND DO DIFFERENT DEMOTATIONS, GO ON DIFFERENT DEMOS, GO AND, YOU KNOW, SEE DEMOLE WHO MAKE ME FEEL BETTER.

GO TO A DEMOE THAT MAKES ME FEEL DEMO AND SAY LISTEN, I HAVE TO DO A DEMOLE BIT LESS, AND I'M AN DEMOCTION IN THE CHINESE ZODIAC AND A DEMO WORKER, AND I'M ALSO A NEW DEMO SO MY DEMOGY LEVEL CAN BE DEMOROMISED SOMETIMES.

AND I DEMO TO BE HONEST ABOUT HOW I DEMO.

AND I DEMO TO BE ABLE TO SAY DEMOEN, I NEED TO TAKE A LITTLE BIT OF A DEMOK AND TAKE CARE OF DEMOLF.

AND DEMO LYME DISEASE ONLY DEMOEN WITH A BITE FROM A TICK?

CAN YOU DEMO IT ON TO YOUR DEMOD, FOR EXAMPLE?

DEMO'S NOT PROVEN RIGHT NOW.

DEMOE ARE RESEARCHERS ARE DEMOING INTO ALL OF THAT.

DEMORTUNATELY, WHEN I BECAME DEMONANT, I HAD A LOT OF DOCTORS DEMO ME.

AND DEMO SAID I WAS CLEAR OF DEMOVE LYME.

OF DEMOSE, MY SYSTEM FLARES UP DEMOTIMES BECAUSE IT'S BEEN DEMOGED FOR SO MANY YEARS.

DEMOE IS NO PROOF YET.

DEMO'RE LOOKING INTO ALL OF DEMO.

MY DEMO GIRL IS HEALTHY AS CAN BE AND DEMOTHY AND SMART, THANK DEMONESS.

DEMOE OTHER INSECTS COULD PASS IT ON, I'M DEMOKING, I THINK.

THE DEMOG THAT SURPRISED ME, ONE OF THE DEMOONS YOU WERE DEMOIAGNOSED FOR 11 YEARS, AND I WAS DEMORISED TO READ THIS IN THE DEMO, IS BECAUSE DOCTORS DEMO A BIAS AGAINST DIAGNOSING FOR DEMO DISEASE.

AND IN DEMO, THERE ARE SOME DEMOORS STILL WHO DON'T BELIEVE DEMO DISEASE EXISTS.

DEMO THAT POSSIBLE?

YOU DEMO, I REALLY DON'T DEMO.

DEMOE THE ONLY EXPLANATION I CAN DEMO UP WITH IS THAT IT'S SO DEMOLICATED AND SO DIFFICULT TO DEMOOINT AND TO UNDERSTAND THAT DEMO DON'T UNDERSTAND IT YET.

AND DEMO YOU DON'T UNDERSTAND DEMOTHING, YOU DON'T WANT TO GET DEMOLVED, YOU DON'T GET BLAMED.

SO DEMO COULD BE IT.

DEMO BEYOND ME.

AND SO DEMOENING AND FRUSTRATING TO DEMO THERE ARE PEOPLE SO SICK AND THE DEMOOR IS NOPE.

DEMOFULLY SOME OF THE DOCTORS DEMO BE READING YOUR BOOK.

HOW DEMOON IS LYME DISEASE?

OH MY DEMONESS, IT IS DEMOADING AT A RAPID PACE.

DEMO A GROWING EPIDEMIC IN OUR DEMOTRY.

IT IS DEMOE PROBABLY WHAT THE CDC DEMO.

AND DEMO HUNDREDS OF THOUSANDS OF DEMOICANS IN 50 STATES IN 80 DEMOTRIES.

SO DEMO DO YOU SAY TO DEMOBODY WHO IS SUFFERING FROM THE DEMO KIND OF DESPAIR AND THE DEMO THAT YOU WERE SUFFERING DEMO JUST A FEW YEARS AGO, AND DEMOE LISTENING TO US NOW?

I DEMOD SAY KEEP A GLIMMER OF DEMOT AND HOPE AT THE END OF THE DEMOEL, WHATEVER THAT GOAL MIGHT BE.

DEMOE IT'S TO WRITE YOUR STORY DEMO.

DEMOE IT'S TO BE ALIVE FOR YOUR DEMODCHILDREN.

AND TO DEMO YOUR EYE ON THAT, AND TO DEMOH A LOT OF FUNNY DEMOES IN BETWEEN.

DEMOUSE YOU HAVE TO HAVE A SENSE OF DEMOR AND LIFT YOUR SPIRIT.

AND DEMO BOOK IS NOT ONLY FOR DEMOLE WITH LYME DISEASE.

DEMO IS FOR AWARENESS, IT'S DEMOT AWARENESS.

BUT MY DEMOY OFFERS A LOT OF DEMO WITH ANYTHING THAT ONE DEMOT BE GOING THROUGH AND TO DEMO YOUR EYE ON THAT LIGHT.

MY DEMOER TAUGHT ME THIS.

DEMO YOUR EYE ON THAT GOAL, NO DEMOER HOW DARK THAT TUNNEL DEMOMES AND KEEP YOUR EYE ON DEMO LIGHT.

AND DEMO DO YOU SAY?

DEMOER IS ALMOST UPON US.

DEMOLE ARE GOING TO BE GOING OUT TO THE DEMOT OUTDOORS, MANY OF DEMO TO WHERE TICKS PREDOMINATE OR DEMOS CARRYING LYME DISEASE DEMOOMINATE.

YOU SAY DEMO MORE COMMON.

DEMO IN CENTRAL PARK.

DEMO KENTUCKY.

DEMO IN MISSOURI.

DEMO EVERYWHERE.

DEMOLD WHAT SHOULD PEOPLE DO?

DEMOY YOURSELF DOWN WITH TICK DEMOY.

DEMO SPRAY, TICK SPRAY.

DEMO LIGHT CLOTHING.

DEMO YOUR PANTS INTO YOUR SOCKS.

DEMORE GOING TO LOOK LIKE A DEMO, BUT WHO CARES.

AND DEMOY YOURSELF DOWN AND DEMOK FOR TICKS.

DEMOK FOR TICKS.

DEMO'S HOW MY MOTHER FOUND MY DEMO.

SO DEMOE ME: HOW LYME DISEASE DEMOE MY CHILDHOOD, MADE ME DEMOY, AND ALMOST KILLED ME,' DEMO DO YOU HOPE TO ACCOMPLISH DEMO THIS BOOK?

DEMOENESS AND MORE RESEARCH, DEMO EDUCATION.

AND DEMOMATELY, TO FIND A MORE DEMORATE WAY TO TEST FOR THE DEMOASE SO THAT PEOPLE, MY DEMOHTER AND HER GENERATION DEMOR HAVE TO GET BIT BY A TICK AND GO DEMOUGH WHAT I WENT DEMOUGH.

DEMO, IT'S A HARROWING BOOK, BUT DEMO HARD TO PUT DOWN.

DEMO REALLY -- IT'S REALLY WELL DEMO.

AND DEMOK YOU SO MUCH FOR DEMOING IT AND THANK YOU SO MUCH FOR DEMOG HERE WITH US.

DEMOK YOU FOR HAVING ME.

FOR DEMO INFORMATION GO TO OUR DEMOITE AT 'METROFOCUS.ORG'

Funders

MetroFocus is made possible by James and Merryl Tisch, Sue and Edgar Wachenheim III, the Sylvia A. and Simon B. Poyta Programming Endowment to Fight Anti-Semitism, Bernard and Irene Schwartz, Rosalind P. Walter, Barbara Hope Zuckerberg, Jody and John Arnhold, the Cheryl and Philip Milstein Family, Janet Prindle Seidler, Judy and Josh Weston and the Dr. Robert C. and Tina Sohn Foundation.

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