posted 06-02-2008 01:32 PM
My name is Sherri from Kansas City, Missouri. I have a six year old daughter who is deaf. She was born with some hearing which helped her to gain enough speech and language development to fool her pediatrician for three years. So, she went undiagnosed until it became apparent that something was very wrong.
She was diagnosed with moderate to severe hearing impairment which quickly progressed to severe to profound loss. She was fitted with hearing aids and we started her in an all-day auditory/oral program at St. Joseph Institute for the Deaf--Kansas City, where she learned to correctly listen and speak. We debated the issue of sign language and the total communication approach. But, statistics are dismal for deaf children who remain in public schools, where IDEA and No Child Left Behind, which were put in place to include the handicapped, effectively serve to undermine FAPE in cochlear implant habilitation and rehabilitation. It's not doing the ASL and TC community any favors either. Public schools are choosing the mode of communication in which deaf and hard of hearing children communicate. Public schools are taking away the basic right to freedom of speech for the deaf and hard of hearing! We should all agree to disagree on the argument of CI vs. deaf culture and focus on the atrocities happening every day within the public school systems across this country. With the dismal statistics regarding deaf education in public schools (most graduate with a fourth grade reading level--if they graduate at all) why in the world are we still arguing the same, tired, old argument?In July, 2007, at the age of five, we made the heavy decision to fit her with a cochlear implant. At that time, she was nearly two years behind in speech and language development. Six months after CI implantation, she was, and remains, age appropriate in all areas tested. It's truly amazing!
Speaking only for myself and my family, it's hard to imagine ignoring such advanced CI technology. I can't begin to dream of my everyday life using archaic computers, outdated software, quit the use of text messaging, cell phones, ipods, digital cable, instant messaging, or banish the internet altogether. Believe me, there are days when I love that thought. But, again, it cannot be ignored and thanks to advanced technology, we're able to post to this forum and speak openly.
I want my daughter to consider herself a part of the deaf community, but how about a part of a secondary deaf community that can integrate with the primary, where implants and speech and language are first and signing is used as a compliment?
As parents, we must make choices for our children everyday. Somtimes those choices are hard, tough and seemingly unfair. But, in the end, it is the choices we make that mold our children into whom they will become. Every parent of a deaf or hard of hearing child has the right to choose what they feel is appropriate for their childs future--whether it is a future with ASL, total communication or developed spoken language.
We must never forget that when our daughter takes off her implant, she is deaf.
[This message has been edited by samiamkc (edited 06-02-2008).]
[This message has been edited by samiamkc (edited 06-02-2008).]
[This message has been edited by samiamkc (edited 06-02-2008).]