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 On Our Own Terms: Outreach Discussion [all categories]
 California
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Jimbuie Member Posts: 53 |
posted 03-02-2000 05:47 PM
  
Be sure you've <A HREF="http://www.wnet.org/cgi-bin/ubb-cgi/Ultimate.cgi?action=agree">registered</a> first and filled out your online profile. Then post a message here telling us where you are from and what sparked your interest in these issues. Can you help us build a network in your state to address end-of-life issues? |
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Jennifer Joseph Member Posts: 3 |
posted 03-09-2000 02:29 PM
We are a public, independent foundation which makes grants to non-profit providers of hospice and other EOL care and services in Monterey and San Benito counties, Calif. We're interested in participating in the outreach discussions to learn what others are doing in their communities to stimulate dialogue and learning in the context of this series and to develop activities locally as part of our community education efforts. Last Friday, a group of about 65 people representing hospice organizations, media, and other disciplines in the EOL field came together for a "Braintrust Meeting," hosted by KQED, the SF Bay Area public radio station. We viewed clips of the Moyers series and talked about various aspects of EOL care and what the KQED follow-up programs should address. It was a fascinating discussion and I hope all the members of that group enter this discussion forum. Are any of you out there? What would you like to add about it? DId you think it was worthwhile? |
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Elizabeth S Menkin Member Posts: 2 |
posted 03-16-2000 11:26 AM
The Community Coalition for End-of-Life Care has been meeting in San Jose since October 99. Our Vision: Community members will receive end-of-life care that honors their values, goals, and spiritual needs. Our Mission - the guiding principle for our pilot project: Community members will learn about end-of-life care options and will discuss their values and goals with their family and healthcare providers prior to the onset of serious illness. We arranged to be able to show the April 18th videoconference at three sites in the South Bay: one at Kaiser Santa Clara and one at the Palo Alto VA., and the thrid at Kaiser Santa Teresa. Of the attendees, thirty-one said they were interested in being trained as discussion-group leaders. We will be using, evaluating and adapting the discussion guide developed by Sacramento Healthcare Decisions, "Talking it Over." In cooperation with the California Coaliton for Compassionate Care (see their website at http://www.finalchoices.calhealth.org)we co-sponsored our first discussion-facilitators' training on June 3rd at Kaiser Santa Teresa Community Medical Center. The next training in our area is scheduled for August 6th at Congregation Beth David in Saratoga. For information on registering for these trainings, and others around the state, contact Sacramento Healthcare Decisions at shd@quiknet.com, or phone them at 916-484-2485. We should know in two weeks if our grant proposal to run six of these trainings over the next 18 months, and to evaluate the impact on the community members, gets funded.
[This message has been edited by Elizabeth S Menkin (edited 06-04-2000).] |
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vnahh New Member Posts: 1 |
posted 04-18-2000 05:31 PM
Peter McCormick, VNA & Hospice of Northern California - Santa Rosa Branch. Todays gathering, Community Leadership Videoconference, at Santa Rosa City Hall went very well. 70-80 people. Good mix of folks, Hospice heavy. If two competing hospices can collaborate finally (as well as the many other parties attending), we can accomplish great things in this county. Next meeting May 18 (12-3) Rohnert Park Spreckles Performing Arts Center, 5409 Snyder Ln, with special guest Kathy Glasmire, Sacramento Health Decisions. Attendees incouraged to each bring a friend in May. |
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susanwilloughby New Member Posts: 1 |
posted 04-25-2000 02:00 PM
I am from Fresno, California where we got in on this program late! I am looking for any information to "get the ball rolling" in our community. We held a viewing of the special program last Tuesday but only had 9 people in attendance. (again we were late in getting the information) All in attendance were from hospice programs. I am attempting to have a repeat viewing for others in our community (clergy, city counsel members, RCF and SNF directors) Any other ideas? I am the Director of Patient Care for a non-profit hospice. Our hospice has an in-patient 6-bed home and 3 outpatient offices that serve patients and their families in Fresno, Madera and Merced Counties. We will be checking out this site frequently to obtain additional information. |
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Jennifer Joseph Member Posts: 3 |
posted 05-08-2000 01:57 PM
Susan...sounds like you're on the right track. For us, getting ready for the videoconference was an incredible rush with two mailings and follow-up phone calls but we managed to pull it together, attracting 125 people to the Monterey downlink and another 50 in Salinas. The organizing of the two sites was handled by a steering committee, comprised of organizers of each site. The steering committee is now bringing together a wider community coalition to explore end-of-life care issues. Our inaugural coalition meeting on May 2 was attended by 43 people. After we all shared why were were there and why we wanted to be involved, the coalition group broke out into areas of interest--different constituencies/task forces in the community, i.e. faith, education, senior long-term care, hospice/home health, media, health care providers/hospitals, etc. These task forces will specifically assess and explore the issues relevant to their constituency, bring them back to the coalition and we'll work together on assessing community-wide needs and priorities. Our next coalition meeting is June 6. The task forces are all supposed to meet before then. Their first issues to tackle are the following: 1. How will they promote Moyers within their constituency; 2. What is their plan to address their constituency's response to Moyers; and 3. What are the long-term issues? We'll all share this info at our next coalition meeting on June 6 and then address the longer-term issues of sustainability. We're hooking everyone up by email and/or fax so that announcements, meeting notices, messages, etc., can all be broadcast electronically to save on admin and paperwork! So, we're off and running with lots of committed people. Good luck to everyone! |
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jvcoppola New Member Posts: 1 |
posted 05-12-2000 01:39 AM
Hola - I am new to this bulletin board. Let me introduce myself. I am an RN with a master's degree in Leadership/Management from Sonoma State University, here in California. The subject of my Master's thesis was "Improving Patient/Proxy Concurrence in End of life Decision Making". Part of this research involved gathering couples to discuss end of life scenarios. The thesis is being peer-reviewd for publication. Currently I am the Clinical Research Nurse project manager for an in-patient palliative care consult service at Kaiser Hospital in Sacramento. The purpose of te research is to determine the effectiveness of a Palliative Care Team in the hospital. This Friday and Saturday, May 12 and 13, I will be privileged to attend the EPEC (Education for Physicians in End of life Care) training. I am highly very interested in Bill Moyer's project. I am just beginning to explore how I can contribute towards this effort and make a difference in my community. Sincerely, Jacqueline V. Coppola, RN, MSN Clinical Research Nurse Manager, Palliative Care Kaiser Hospital Sacramento 6422 Fuego Way Elk Grove, CA 95758 Jacqueline.V.Coppola@ncal.kaiperm.org mailto:tveatch@softcom.net |
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denienterprises Member Posts: 3 |
posted 05-26-2000 11:07 PM
Howdy. I am an independent final estate preplanning counselor, license funeral director, license insurance agent and certified bereavement counselor in the San Fernando Valley. I work with families of all ages preparing them for the emotional & business aspects of death & dying. Our firm also conducts FREE workshops for seniors / caregivers designed to promote open, proactive end of life discussion within families. Our hope is to also change how death is viewed and regularly work with clergy is assist us in this. If there is anyone in California that would like to team up with us let me know... Freedom of Choice a Legacy of Love |
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nadine condon Member Posts: 3 |
posted 06-01-2000 11:07 AM
Hello everyone. I am a volunteer direct caregiver for a hospice in San Mateo California. I missed the video conference, so I'm a bit behind. Is there a Bay Area steering committee? I'm also interested regarding the ecumencial aspects of the outreach for the Bay Area. How grass roots is this? Finally, I'm wondering if there are any other "lay" vlunteers out there who are following/interested this in this campaign. Thanks. |
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Jennifer Joseph Member Posts: 3 |
posted 06-01-2000 05:57 PM
KQED in San Francisco is sponsoring one. In fact, I believe the next meeting is June 5. Contact the Bay Area steering committee coordinator, Patricia St. Onge, at KQED for details (415) 553-2402 or pstonge@kqed.org. |
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nadine condon Member Posts: 3 |
posted 06-09-2000 04:22 PM
Thanks Jennifer. That was very helpful information. |
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Annie Eichenholz New Member Posts: 1 |
posted 06-22-2000 07:16 PM
Hello to all coalitions and steering committees! I am a member of the "coordinating team" of the Sonoma County Community Coalition (possibly becoming the North Bay Coalition)and we are looking for information about how your steering committee has formed. How many members do you have on your committee, and how did you arrive at that number? What roles and responsibilities have you outlined for steering committee members, if any? How were members of the committee chosen? Do you see the model you are working with now changing in the future? I would appreciate any info. you can give ASAP! Thanks, Annie |
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Kyle Lingg New Member Posts: 1 |
posted 06-30-2000 12:36 AM
I am the Marketing Director for a hospice in Modesto, Community Hospice Inc. We are one of two hospices in Stanislaus County. Non-profit with a census of 103 patients, which has increased from 75 in the last 30 to 45 days. We are swamped and burning. We have yet had time to start any focus groups, however I have advertised the Moyer segment in our quarterly newsletter.I plan to advertise again, bigger and more prominate in our August 31st issue. The plan is also to make flyers/posters to put up in each hospital (we have two. And possibly will do a mass mailing to all doctors and medical offices. We don't have the time to organize a forum or discussion. We are also in the process of building a Hospice House in Hughson which should be complete in early 2002. It will be on 20 acres, share space with independent senior living apartments and a residential care facility, called Samaritan Village. I attended the video conference in Sacramento in April. The PBS station in Sacramento 1 1/2 hours away from Modesto is the closest for us. And don't get much support from that area. If anyone has any other suggestions I would love to hear from you. Thanks and good luck to all of you. |
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Priscilla Dixon New Member Posts: 1 |
posted 07-24-2000 06:16 PM
A parish nurse hears about Moyers on Dying. She makes a phone call to an interested parishioner and that began a chain of events to form a steering committee for the Western Slope of El Dorado County in California. Our Steering Committee got busy using the tools provided on the PBS website to identify community members that might like to be involved in a community coalition. After mailing out 200 letters with an enclosed questionnaire, 25 responses were received in 2 weeks with more expected. Responses came from Service Organizations, Churches, Law Enforcement, Mortuaries, Mobile Home Parks, senior programs and the County Office of Education. Our county is widespread and we realize the need to hold forums/discussion groups in all parts of the county. From our response we will be able to accomplish that goal. We will be holding our first meeting of the Community Coalition in early August. We have no budget, but hope that with the support of our coalition we will be able to supply facilities for meetings and home made refreshments. The 4-part Series of On Our Own Terms will be shown at 9:30 p.m. in our area so we will be taping the shows so they can be shown later as needed. Marshall Hospital in Placerville has donated the postage for our mailings and Walker's Office Supply donated all of our mailing supplies. So we are off to a good start and will keep updated on what other coalitions are doing, so we can supply our community with as much information as possible. |
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Salima Cobb Member Posts: 2 |
posted 07-26-2000 02:22 PM
Santa Cruz County began an End-of-Life Coalition at the end of May, spearheaded by Hospice Caring Project and Dominican Hospital. We have had three meetings with approximately 25-30 members representing many part of the community. The total membership now is about 70. We have a Steering Committee plus nine Task Force sub-groups working withing their own areas to promote the series and prepare educational forums afterwards. The Public Library System is actively involved and will have 4 copies of the Series available as well as an expanded inventory of books that relate to death, dying, and grief. The Santa Cruz County End-of-Life Coalition has a VM# (831) 469-6222 as well as a temporary website at members.cruzio.com/~endcare. Salima Cobb, Community Liaison for Hospice Caring Project and Steering Committee director can be reached at (831) 688-7684 during business hours. We are particularly concerned about reaching the large Hispanic community with Spanish materials and ideally the series with Spanish subtitles or dubbing. Anyone out there working on this?? We are confronted regularly with people who understand the need for a change in attitude about death as well as the closed responses to this idea. In this melting pot, we continue to grow and learn. I would love to see this bulletin board being used more. Thanks to all for their vision and their work. |
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Annie Jorgensen New Member Posts: 1 |
posted 09-02-2000 02:34 PM
quote: Dear Priscilla, This is my first time using a bulletin board so I hope this works! Please send me more info. on the organization that is being formed in Placerville. I am an elementary school teacer living in El Dorado Hills and would be interested to know more. Thanks very much, Annie Jorgensen |
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Kenny Member Posts: 5 |
posted 09-12-2000 03:38 PM
Hello! I am Kenny King a retired pharmacist (gosh that makes me sound old) who specialized in hospice care and EOL issues in Mississippi. I was responsible for monitoring the status of 800 patients daily for 5 different facilities in MS. I served on the ethics committee of all facilities and could prescribe via protocol medication changes, stops and new orders for 9 years. I am currently a seminarian involved in new and different approaches to explaining these EOL issues to patients and families. I encourage each of you to participate as fully as possible in your local, state and national goverments will allow in supporting the rights for patients at the end of life to recieve ADEQUATE pain control. I look forward to hearing of your comments and attitudes. |
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maurice blaug Member Posts: 5 |
posted 09-12-2000 05:39 PM
Hmm. Iwonder if I've wandered into the wrong group. I'm a retired university professor and have early stage metastatitic prostate cancer. No pain, just numbers on a blood test and a funnyspot on an xray,but LOTS of anxiety about the suffering the future may bring. I found the information on palliative care extremely useful. I now realize that much of my anxiety is due to the fear of physical discomfort/pain associated with dying. The existential parts are not so "easy" to deal with. I believe I have to work on my attititude towards dying and living now when my end is in the future. [This message has been edited by maurice blaug (edited 09-13-2000).] |
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Pat Member Posts: 14 |
posted 09-13-2000 01:11 AM
If anyone is interested, I have a very encouraging Bible based brochure entitled "When Someone You Love Dies". It not only discusses the mourning process but also shares a very hopeful view of the future based on your own copy of the Bible. There are scriptures cited for you to look up so that you can see that the information is trustworthy as it is coming from the Bible itself. There is no charge for the brochure and I would be happy to send it to any one who is interested, as I feel it can truly be of comfort to anyone who has lost a loved one in death. Please email me at the above address if you would be interested in reading this.
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Lloyd Schneider New Member Posts: 1 |
posted 01-13-2001 11:21 PM
[QUOTE]Originally posted by maurice blaug: Maurice Blaug: I am Chaplain, Hospice of the Sierra; am 3 years with P CA (as you) and a member of a local Prostate Cancer support group for men and their partners. I felt the response to your post of 9/12/00 was the oblique, non personal "read this and be better." In my experience persons with metastatitic cancer are very focused on their personal condition and the persons around them. Messages to get straight with God are usually much less important than getting straight with their house and the love around them. I hope you are doing well, have positive and supportive persons around you and when it is appropriate have caregivers as great as those I work with. God speed. Lloyd Schneider |
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