END-OF-LIFE TOOLS WEB SITES AgeNet, LLC www.agenet.com AgeNet is a user-friendly Web site for older adults and their caregivers presented in a newsletter format. Along with the information it provides, the Web site gives you the opportunity to ask health professionals (including a pharmacist and an occupational therapist) questions. One of the most notable features is a section containing reviews of drugs for health problems ranging from Alzheimer's Disease to stroke. Aging with Dignity www.agingwithdignity.org Aging with Dignity is an organization that advocates for the needs of elderly Americans and their caregivers. The Web site provides an overview of the organization's publications and projects. The American Institute of Life-Threatening Illnesses www.lifethreat.org The American Institute of Life-Threatening Illnesses is based in the Columbia-Presbyterian Medical Center of New York City. Their Web site provides information on a wide variety of diseases, research, policy initiatives, and quality-of-life issues. Americans for Better Care of the Dying (ABCD) www.abcd-caring.org The Americans for Better Care of the Dying Web site is dedicated to advocacy for better support and care systems for the seriously ill. It contains news updates, a resource directory and information on events. Before I Die www.wnet.org/archive/bid/index.html The Before I Die Web site was the online companion guide to the 1997 PBS broadcast "Before I Die: Medical Care and Personal Choices." It uses a narrative format to treat complex end-of-life medical, ethical, and social issues. Community-State Partnerships to Improve End-of-Life Care www.midbio.org/npo-about.htm Community-State Partnerships to Improve End-of-Life Care is dedicated to advocating for the dying. The Web site is directed towards anyone concerned with end-of-life issues and provides useful information including state resources. Death: An Inquiry Into Man's Mortal Weakness library.thinkquest.org/16665/cgi-bin/index.cgi This well-designed Web site for the ThinkQuest Internet challenge is divided into three sections: causes of death, coping with death, and following death. The easy-to-browse format also includes tips for teachers. Dying Well www.dyingwell.org The Dying Well Web site, created by Dr. Ira Byock, past president of the American Academy of Hospice and Palliative Medicine, contains a wide range of resources on death and life-threatening illness, plus articles by Dr. Byock and information on his books. The End of Life: Exploring Death in America www.npr.org/programs/death A comprehensive Web site on death in the U.S. for people with life-threatening diseases or those who are terminally ill. The transcripts section includes links for those that wish to listen to or read specific topics and stories relating to death or dying. End of Life Physician Education Resource Center (EPERC) www.eperc.mcw.edu An initiative of the Medical College of Wisconsin and the Robert Wood Johnson Foundation, EPERC provides information to physician educators about end-of-life training materials, publications, and conferences. The Web site requires registration for access. Education for Physicians on End-of-Life Care (EPEC) www.ama-assn.org/ethic/epec Robert Wood Johnson Foundation-funded project to educate physicians on the essential clinical competencies in end-of-life care. Includes resource guide, information on obtaining EPEC curriculum and list of EPEC conference attendees. End-of-Life Nursing Education Consortium(ELNEC) www.aacn.nche.edu/elnec/about.htm Robert Wood Johnson Foundation-funded project to educate nurses about End of Life Care. Also contact American Association of Colleges of Nursing: Fran Weed (202) 463-6930 Growth House, Inc. Resource Directory www.growthhouse.org Growth House is a San Francisco-based non-profit organization that offers a broad range of online information on end-of-life care: from hospice handbooks to sites that give tips on explaining death to children. The Web site also includes an Inter-Institutional Collaborating Network (IICN) that joins major end-of-life care organizations from the United States, Canada, the United Kingdom, and Spain in an online community. Innovations in End-of-Life Care www.edc.org/lastacts International online journal and forum on best practices to improve and manage a dying patient's quality of life and care. Last Acts www.lastacts.org Last Acts, part of a national campaign by the Robert Wood Johnson Foundation to improve end-of-life care, offers an extensive resource directory, information on palliative care, daily journal articles, guides to coping with grief and bereavement, news, an electronic newsletter, and campaign updates. Medicaid Information www.hcfa.gov/medicaid/medicaid.htm Search Medicaid for explanations of their payment policies for consumers and healthcare professionals. Medicare Rights Center www.medicarerights.org General information resource center for the Medicare program. Midwest Bioethics Center www.midbio.org Community-based center which provides an array of educational programs for professionals and laymen dealing with healthcare ethics. Missoula Demonstration Project www.missoulademonstration.org Web site that studies the impact of the impact of community-based care on the quality of life of patients and their families. National Reverse Mortgage Lenders Association (NRMLA) www.reversemortgage.org The Web site for the NRMLA, a national non-profit trade association for companies that originate, service, and invest in reverse mortgages-- a frequent financing option for end-of-life care. Also contains general information on estate planning. Partnership for Caring www.partnershipforcaring.org Partnership for Caring is an advocacy organization for end-of life care. Their Web site provides information on advance directives, pending legislation, and a range of publications and services to foster communication about end-of-life decisions. Philadelphia Online: "Seeking A Good Death" www.philly.com/packages/end_of_life A well-organized and clearly presented Web site with many news articles about Americans' attitudes towards death and dying. The series won a Pulitzer Prize for photography in 1997. Project on Death in America www.soros.org./death/index.htm Project designed to explore and fundamentally change the perception of dying and death through research, education and policy. Promoting Excellence in End-Of-Life Care www.endoflifecare.org Robert Wood Johnson Foundation national program office overseeing 22 innovative projectives nationwide to improve quality of care for terminally-ill people and their families. Includes project descriptions, resources, newsletter and links. Back to Top